The journey with my son and his condition, Sagittal Craniosynostosis.

My son was diagnosed with Sagittal Craniosynostosis Thursday, September 2, 1010, and he had surgery to correct it on Wednesday, September 8th. This is my story, journey, experience...I hope this helps relieve another family, as the Sprik family did for me.

Tuesday, October 5, 2010

(3) CT Scan

On Wednesday, September 1st, my husband and I took Kellan to Steinberg Diagnostics to have the CT Scan done.  They had to sedate Kellan, because of his age, since you can’t move at all when the scan is being done.  Watching my son be medicated, and then having him fall asleep in my arms, was much more difficult than I thought it was going to be.  I definitely teared up!  It was very hard on my husband as well, I look to him for strength, yet at this moment he too was emotional and vulnerable.  About 20 minutes after taking the medicine, Kellan was sound asleep and I took him into the room where they performed the scan.  Thankfully I was able to stay in the room with him the entire time.  After the scan was done, I had to try to wake Kellan up so that he could prove to the nurses he could swallow, then we would be allowed to go home.  It took him about 15-20 minutes to wake up, and when he did, he wasn’t a very happy boy!  He ate a couple of ounces, proved he could swallow, and then I gracefully got him out of there and home.  He slept most of the day, which I was warned he would probably do.   I was told by the nurses that we would probably get the results on Friday at the earliest, possibly Tuesday since Monday they were closed for Labor Day.  

Three hours later I received a phone call from my pediatrician.  They had received the results of the CT scan, and subsequently they had already made an appointment with Dr. Blum, a Pediatric Neurosurgeon for us for the following day.

Note the shape of his head.


Side view, showing the ridge on his head. He had an oblong shaped head, his brain was being pushed out the back.

Very prominent forehead.

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